Being a Fighter of Rare Syndrome, 11 Photos of Oki Setiana Dewi Accompanying Sulaiman in Therapy - Staying Strong and Patient When the Little One Cries

Sulaiman and therapy seem to be inseparable since the youngest son of Oki Setiana Dewi and Ory Vitrio was born.

At the age of 15 months, Sulaiman still cannot engage in activities like other children his age due to a rare syndrome he has.

According to halodoc.com, individuals with Prader-Willi syndrome experience various symptoms such as developmental/intellectual delays and excessive sleepiness.

Therefore, Sulaiman regularly undergoes three types of therapy simultaneously, which are physiotherapy, speech therapy, and respiratory therapy using assistive devices.

Seeing Sulaiman showing progress over time, combined with his sweet smile, always makes Oki Setiana Dewi grateful.

Having to undergo therapy regularly several times a week, there are times when Sulaiman gets fussy and cries during therapy sessions.

However, Oki Setiana Dewi always appears strong and patient, accompanying her beloved child by giving words of encouragement every time Sulaiman undergoes therapy.

For your information, Sulaiman, who was born in November 2020, is known to have experienced TNN (Transient Tachypnea of Newborn) or respiratory problems since birth.

Until the age of 3 months, Sulaiman always uses a feeding tube that goes from the mouth to the stomach to help prevent choking while breastfeeding.

Sulaiman also undergoes sleep studies that are beneficial for monitoring his physical condition. Some time ago, Sulaiman also underwent surgery.

Stay strong for Sulaiman and also Oki Setiana Dewi. May the therapy always go smoothly and the little one can become healthier.