10 Portraits of Celebrities as Great Parents Caring for Children with Rare Diseases, Staying Strong Through Long Journey Towards the Recovery of their Little Ones

Asri Welas and Galiech Ridha Rahardja were blessed with the birth of their second child on April 12, 2017. However, in the same year, Asri Welas shared a sad story because Rayyan Gibran Ridha Rahardja suffered from cataracts since birth. The little one had to wear special glasses and undergo regular treatment at the hospital.

Famous singer Denada had to face a bitter reality when her only daughter with Jerry Aurum was diagnosed with leukemia. She did everything she could for her child's recovery, even had to work hard to pay for the expensive treatment in Singapore.

Aurora, the only child of celebrity Namira Monda, was born with a closed cranial suture indicating Craniosynostosis, a condition that can hinder brain development. Aurora also suffered from Brain Atrophy, which is the loss of brain cells and tissues that caused her brain to shrink from its normal size.

Shannuel, the first child of Tiffany Orie and Jevier Justin, has cerebral palsy, a condition that causes paralysis in the brain and has been undergoing therapy since the age of five. Despite this, Shannuel remains spirited and grows well thanks to the love given by both parents.

After giving birth to her fourth child, Joanna faced a special condition where her baby girl named Ziona Eden Alexandra Panggabean was born with respiratory and leg abnormalities. Baby Ziona, who was diagnosed with Campomelic Dysplasia, had to be born prematurely at 36 weeks and 3 days in the womb.

Marcella Zalianty and Ananda Mikola's second son, Magali, was diagnosed with a brain tumor in 2014 at the age of one. Despite this, Marcella remained patient and diligent in accompanying her beloved child in the treatment process. As time went by, Magali's condition improved.

Sulaiman Ali Abdullah, Oki Setiana Dewi's fourth child, was diagnosed with Prader-Willi Syndrome at birth. This genetic disorder caused Sulaiman to be treated in the NICU for months. However, by undergoing various surgeries and therapies, Sulaiman's condition improved and the little one grew up happily.

Ladzan Syafiq Sunandar, the son of comedian Dede Sunandar, was known to have Williams Syndrome. At the age of 3 months, his child was diagnosed with a rare genetic disease that affects the heart, lungs, and stomach. Ladzan also had to undergo a series of four-stage surgeries until he was 23 years old.

Surya Saputra and Cynthia Lamusu became parents of a special child who experienced a special condition called AP-ROP (Retinopathy Posterior Aggressive Prematurity), a severe and rare disorder of the eyes. Therefore, since infancy, Bima had to wear special glasses as part of his treatment.

Tengku Omar, one of Cindy Fatika Sari and Tengku Firmansyah's twin sons, has Autism Spectrum Disorder (ASD), a neurological developmental disorder that affects his communication and interaction abilities. Recently, Omar, who is enthusiastic about academics, graduated from high school with a C package at the age of 19.