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10 Portraits of Namira Monda's Struggle in Raising Aurora, Who Suffers from Craniosynostosis - Her Child's Stunting Confession - Now 'Chubbiness'

10 Portraits of Namira Monda's Struggle in Raising Aurora, Who Suffers from Craniosynostosis - Her Child's Stunting Confession - Now 'Chubbiness'

Celebrity Children

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10 Portraits of Namira Monda's Struggle in Raising Aurora, Who Suffers from Craniosynostosis - Her Child's Stunting Confession - Now 'Chubbiness'

Raising a child with a rare disease is an extraordinary task. Although this struggle is filled with difficulties, the resilience and determination of parents in loving and caring for their child is an amazing inspiration for many people.

Including influencer Namira Monda and her husband in raising their only daughter, Aurora Zalfa Remialdy, who suffers from Craniosynostosis. Let's take a look at their photos!

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Aurora has been diagnosed with Craniosynostosis since birth, a rare condition where the baby's skull closes prematurely before the brain fully forms.

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In addition to Craniosynostosis, Aurora has also been diagnosed with other disorders, including microcephaly, brain atrophy, cerebral palsy, and epilepsy.

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Overall, Aurora's conditions have caused her to experience global development delay (GDD), which involves delays in multiple aspects of child development.

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Due to her condition, Aurora has to use a nasogastric tube (NGT) or feeding tube to receive liquid food through her nose.

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She also undergoes physiotherapy, sensory integration, and oral therapy to help develop her motor skills and maintain muscle strength and flexibility.

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As parents with a special child, Namira Monda and her husband always prioritize Aurora, where both play an active role in taking care of the little one.

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Amidst their busy schedules, Namira Monda and her husband are still able to feed, change the tube, carry when fussy, accompany playing, and even go on vacation together with Aurora.

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Of course, they encounter various challenges. Aurora initially had low weight as a baby, but now her mother says that Aurora is actually overweight.

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Aurora also had to stop oral and sensory integration therapy during the pandemic, which caused her to not make progress, especially in terms of oral skills.

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However, Namira Monda and her husband remain optimistic and enthusiastic in raising their beloved child with full of love and affection. It's really cool, KLovers!